GRiP has completed one of the first steps towards standardisation of research, by mapping Neonatal Networks (NN) around the world. The task was carried out by the Work Package 6 team, which is committed to improving Drug Development in Neonates, and consisted of two main aims:
• to identify and characterise activities of all NN outside the EU;
• to develop a Registry of NN around the world.
Today, internet-based communication technologies make rapid collaboration among scientists and clinicians possible. Neonatal Networks (NN) are an attempt to exploit this possibility, since they collect standardised patient data to promote excellence in clinical practice by benchmarking. However, their datasets are not specifically developed to perform Randomized Controlled Trials (RCT). Most NN collect data on short and long-term outcomes of very low birth weight (VLBW) and very low gestational age (VLGA) infants, although some also carry registers on malformations, perinatal asphyxia, infections.
To build a clear picture of the work of NN, and thus support productive collaboration among scientists and clincians, the WP6 team has mapped paediatric/neonatal scientific societies around the world.
WP6 team members, led by Adolfo Valls i Soler, identified and contacted 125 paediatric/neonatal scinetific societies, 36 of which were identified outside the EU. This achievement marks an important preliminary step in standardisation of research. The completion of this task will consequently lead to further investigations into data availability and management in paediatric pharmacology, and is the stepping stone towards the codification of better practice in drug development.